Poor data quality and a lack of treatment monitoring in everyday life make it difficult to allocate the appropriate treatment and medication to hemophilia patients. HIT Foundation, together with a Patient Advocacy Group and a Swiss-based pharma company implemented the blockchain-based app CENTIVA LIFE to incentivize patients or the family of child patients to provide/update real-world data.
Blockchain technology is being used to preserve the privacy of the patients, allow for a GDPR conform data handling and the transfer of Digital Health Points (DHP) for providing data. Patients and their families use the DHP to redeem benefits.
Finally, after one year of preparation which was hampered by the pandemic the first patients are being onboarded this January 2021. It is the expectation of all parties involved that data in the existing patient registry will improve, therefore, therapy outcomes for hemophilia patients will too.
Links to the app: